Announcing WORLDFair™ 2026

Event Updates
Written By Jeanine Jarnes

DATE:

FRIDAY, September 18, 2026

LOCATION:

University of Minnesota Landscape Arboretum

3675 Arboretum Drive, Chaska, MN 553218

MEETING TIME:

9:30 AM until 4:00 PM Central Standard Time

(Pacific Standard Time: 7:30 AM until 2:00 PM,

Eastern Standard Time: 10:30 AM until 5:00 PM)

Hybrid Meeting:

WORLDFair™ 2026 will be a hybrid meeting, which will invite patients, caregivers and

healthcare providers to attend remotely through an online link that will be provided to attendees.

Jeanine Jarnes

Dr. Jeanine Jarnes, PharmD, is an Assistant Professor in the University of Minnesota Department of Pediatrics, Medical School, adjunct assistant professor in the Department of Experimental and Clinical Pharmacology at the College of Pharmacy, University of Minnesota and a Graduate Faculty of the University of Minnesota. She serves as a primary mentor for PhD students and lysosomal disease post-doctoral fellowship training programs, a clinical researcher and pharmcogenomicist for the Lysosomal Disease Network, and clinical care for patients with lysosomal diseases at the Advanced Therapies Clinic, University of Minnesota. She is Associate Course Director for WORLDSymposium, an annual international meeting that brings together researchers from around the world for dissemination of lysosomal disease research. Her research focus includes projects in the following areas: natural history of gangliosidosis diseases (such as Tay-Sachs disease, Sandhoff disease, and GM1-gangliosidosis), for which she is Principal Investigator, small molecule and gene therapies, and infusion therapies for lysosomal diseases, living with lysosomal diseases as adults. Dr. Jarnes obtained a Bachelor of Science in Pharmacy in 1990 and a Doctor in Pharmacy in 2004, both from the University of Minnesota. Her training in genetics includes a Master of Science in Pharmacogenomics from Manchester University, North Manchester, Indiana (2022) and a Pharmacogenetics and Pharmacogenomics Certificate through Stanford University (2021). She is a Board-Certified Pharmacotherapy Specialist (since 2007), and Board-Certified Oncology Pharmacist (since 2005).

https://ultrararehealth.com
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