Speaker Announcements

Written By Jeanine Jarnes

We’re excited to begin sharing updates for the WORLDFair™ 2026 Annual Conference! Our team is currently finalizing the list of speakers who will be joining us to provide patient education sessions, share experiences, and highlight the latest insights on Lysosomal diseases.

Stay tuned for our upcoming announcements — we can’t wait to introduce you to our lineup of experts and community leaders who will help make this year’s WORLDFair™ an engaging and informative event.

In the meantime, make sure you’re subscribed to our newsletter to receive updates as soon as speaker details are released.

Jeanine Jarnes

Dr. Jeanine Jarnes, PharmD, is an Assistant Professor in the University of Minnesota Department of Pediatrics, Medical School, adjunct assistant professor in the Department of Experimental and Clinical Pharmacology at the College of Pharmacy, University of Minnesota and a Graduate Faculty of the University of Minnesota. She serves as a primary mentor for PhD students and lysosomal disease post-doctoral fellowship training programs, a clinical researcher and pharmcogenomicist for the Lysosomal Disease Network, and clinical care for patients with lysosomal diseases at the Advanced Therapies Clinic, University of Minnesota. She is Associate Course Director for WORLDSymposium, an annual international meeting that brings together researchers from around the world for dissemination of lysosomal disease research. Her research focus includes projects in the following areas: natural history of gangliosidosis diseases (such as Tay-Sachs disease, Sandhoff disease, and GM1-gangliosidosis), for which she is Principal Investigator, small molecule and gene therapies, and infusion therapies for lysosomal diseases, living with lysosomal diseases as adults. Dr. Jarnes obtained a Bachelor of Science in Pharmacy in 1990 and a Doctor in Pharmacy in 2004, both from the University of Minnesota. Her training in genetics includes a Master of Science in Pharmacogenomics from Manchester University, North Manchester, Indiana (2022) and a Pharmacogenetics and Pharmacogenomics Certificate through Stanford University (2021). She is a Board-Certified Pharmacotherapy Specialist (since 2007), and Board-Certified Oncology Pharmacist (since 2005).

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Announcing WORLDFair™ 2026